Friday, August 20, 2010

Eat more chicken!!

Before Cohen had hearing aids, she could only hear a certain range of pitches and in that range only 4 syllables can be heard-- M, B, D, and N sounds. After we found this out, we were taught how to do some audiometry games with her until we got our hearing aids to help identify what she was hearing. The first letter they told us to start with was "M" and make the "mmmm" sound. So they suggested that we use the cow sound to make the game fun.
Well you know me, we can't just have 1 cow---we have to have the whole farm!! We have cows everywhere. She can identify the cow out of all of animals when asked and if you ask her what the cow says, she presses her lips together and she goes"mmmm." This is a HUGE accomplishment. It is the first hard sound we have been consistent with when she is directly asked to identify.

Couldn't you just eat her up?!?!

We went back and saw the endo last week and her growth hormone levels are up--which is a sign that her body is able to absorb it--but not as high as they would like. Her baseline was 29, she is now at 120, but they would like her at 250. The dr doubled her dose of injection and we will retest in 2 months. We do measure her standing at home and mark her every 2 weeks and according to our measurements she has grown 1/4-1/2" in the last 6 weeks. There is a fine line as to what we want to happen. Insurance says that she must demonstrate adequate growth and increase in levels but can not "overachieve" and grow too much in 1 year because then she will not qualify for the medicine anymore. We have found out recently that it is not necessarily the actual growing part that is the most important but the medicine will help turn her "cherub" body into lean muscle (at this time her body does not make adequate muscle mass) and help mature her bone age (hers is at a 9month old age). We have seen a big difference in her body make up. We used to have all this fat to pinch and give her medicine in and that has gotten harder.
I just previewed this post and if you stayed awake during that last part, you have to be just as big of a nerd as I am because it was sooo boring!! But I know so many of yall ask and are concerned so I try and get all the facts out there and plus I use this as my "journal" to keep up with her progress. Next post I will try and leave all the medical mumbo-jumbo out and just put what yall really come to my blog for---pictures of my little angels!!