Monday we went for Cohen's endocrinology check-up. We hadn't seen Dr. Moll in 6 months so we were anxious to see her stats. Bear and I discussed a few months ago that we wanted to take a hiatus from her Growth Hormone shots. We really didn't discuss this with the dr, we just felt like she had been on them for 2 years and yes, she has grown, but maybe she would have grown that without them, maybe not. Well the results were she grew 2 cm. She is now 35.75" tall and weighed 34lbs. She is still not on the growth chart for height and 40th percentile for height. Growing 2 cm is a big feat for her, but it took 6 months. There is no set amount that she should grow, she just needs to continue on "her" growth curve. The bad news is that we fell on her curve. Her growth did not keep her on the curve she had been maintaining while on the shots :( So we will be getting back on the shots as soon as our insurance gets the details worked out. We are still waiting for her bone Xray results to come back. In the past, her bones have been anywhere from 12-16months behind in age. This is usually the deciding factor for us. We don't care if she is little, small, petite, or whatever you want to call it, but we do want her to be age appropriate and be able to do what other 4 year olds can do. I also discussed my concerns about her physique being still "baby-like" and he agreed that she did not have a mature body yet but her slow muscles are contributing to majority of her stomach area.
Decisions like this are so hard for me. It would make me so happy to know one day we did not have to plan meals around medicine and ensure when we go on road trips that we have a cooler to keep shots at the right temperature. And now that she has a voice, it will tear at me when she screams that she doesn't want her shot (however she did FABULOUS at the lab Monday--not a single tear even when they didn't get it on the first stick!!). But it is days like today that make everything worth it.............
Sweet baby girl was EXHAUSTED today!! And the reason why is so exciting for us. She got a new sound today for her book. It is a BIG DEAL when we get a new sound. She got her 21st sound today and it is "k" (c-uh) sound. You might be thinking, that's not too hard. Well you are WRONG :) "K" is a sound made from the back of you throat--specifically, the velam-- which takes a lot of coordination. Her and Ms. Taneil had been working on this for the last 6 weeks and today she mastered it without any stimuli. YAY!!! So, so proud of her!! Her new goal is to be able to articulate her name correctly. She is so determined! There is no doubt that she will master that too!!
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