Friday, June 10, 2011
Hypothyroidism, Hearing Impaired and Apraxia
Cohen was born October 2008 after 7 weeks of on and off again bedrest due to preterm labor. She aspirated after delivery and was in NICU less than 24 hours but other than that was deemed to be a very healthy baby. We brought her home 2 days later and felt like we were the luckiest parents alive.......Cohen slept 7 hours straight from night 2 on. She very rarely woke up, and if she did it was because she was wet, not really hungry but we fed her because we knew we should. We were also lucky in the diapering area also, she never went!! At 2 weeks old, her big brother brought home a present from school, RSV!! It landed both of them in the hospital for almost 3 weeks. She bounced back well.
Like any parents, we took hundreds of pictures of our baby girl and after showing them to many friends and family, they always commented how cute it was that her tongue was sticking out in every picture. Hmmmm, should we be worried? At 4 months old, we also noticed that Cohen tilted her head a certain way. The dx: Torticollis, treated and resolved by a few months of Physical Therapy. Also at that time we noticed she still wasn't smiling. But baby #2 I tried not to worry and wish her to "grow up" any faster than she did. Finally, a few smiles came around after she was 5 months old. At her 6 month check up, it was noted that she was very small for her age, especially in length. The dr also inquired about her tongue, "Did it always stick out?"
After having a few tests ran, it was determined that Cohen had Hypothyroidism. No biggie, I have hypoT, right? Well, in kids it is completely different. It pretty much controls the whole cognitive development of the brain (this is why it became mandatory in the 1980's to test all babies at birth due to undiagnosed children often were labeled "mentally retarded"). Cohen was tested at birth........right? After months of trying to find out the answer, we think she was but the test results only state "Normal" with no actual numeric value. Anyway, we start her on Synthroid to regulate her thyroid and began seeing our beloved Endocrinologist. We read every article or journal we could to help explain our diagnosis and our prognosis. I will not lie, we were really devastated that she might not be "normal", not for our sake, but for hers. I did not want her to go through any turmoils from her delays. From what we read and were explained by many drs, it would take at least 6 months for her to regulate and then at that time we could determine how far behind she really was.
Posted by brandy and bear