Drs, specialist, therapists, O My!!

Cohen has had a battery of tests run and continues to see one dr after another. We did get the official MRI report that showed that the development of the structure of the brain was completely normal!!! It was an answered prayer!
She was evaluated officially by First Steps at the end of Oct-- she is on a verbal level of a 3month old and on the physical level of an 8-10month old. She qualified for 1x/wk Special Instruction and 2x/month Speech Therapy for oral motor to assist with controling her tongue. Like I said that was October and here it is Dec on Tuesday and we haven't begun her therapy yet---this has been very FRUSTRATING to say the least.
We saw a Neurologist at Batson on Wednesday and she was TERRIFIC!!! We can not express how truly blessed we are to have found such great drs so close! She spent a ton of time with us and sat down on the floor in the room and played and loved on Cohen, we could really tell that she cared about her and ensuring she gets proper care. The other thing that I really liked about her, is that she did not "hide" her concern. She was very upfront with me on the reality of Cohen's prognosis-- which is still undetermined at this time. She scheduled us an EEG on Wednesday at Batson to study the brain activity and rule out seizure activity. We have never seen anything resembling a seizure go on in Cohen, but she said some can be so mild that they are not detected. Also, the MRI can not show the actual connections of fibers and firing going on so this will continue to help with the diagnosis. She did say that if everything turns out normal, then she says any damage done so far is very likely reversible. Babies brains are so plyable and still forming that through therapy and time, hopefully things will catch up. She was a HUGE advocate for therapy and was very disappointed to hear that it has taken us so long to start First Steps and gave us a few alternate routes to think about to get more services.
Cohen is just stealing our hearts daily as she smiles and grins at us! She is taking a few steps everyday-- she is dying to start running after her brother-- she eats us out of house and home, she is wearing 6 months clothes, we moved up to a size 3 diaper but they are HUGE on her, we think we are going to have to go back to a size 2 for daytime when she is moving and use the 3s at night, she loves her sleep 12+hrs a night!! She loves every man that comes near her (not sure what this will mean as she gets older)!!! She is truly a little fighter!!