Thursday, May 21, 2009

7 Months....



and what is so significant about these pictures?....her mouth is closed!!! Although this is still very seldom it is a huge feat for her. It helps us to understand that the medicine is working as it shrinks the size of her tongue and helps the swelling decrease. Cohen has now been on the Synthroid for 4 weeks and we can tell a significant change in her. It is very hard for us to describe but we know she is different. She is still a very content child but she is beginning to show more smiles and emotion, both happy and mad. She has gotten more demanding which lets us know that she now has the energy and desire to tell us she wants something. She went for Speech Therapy yesterday to help assist with her feeding and also her nonverbal deficits. I learned SO MUCH!!! and after an hour of oral stimulation Cohen made a few sounds on her own while the ST and I were discussing our homework! I was thrilled!!
Another encouraging note, she has had an ongoing ear infection since late March that finally required 3 shots of Rocephin last week, why is that good? It could also explain her nonverbal issues as well. We will return for a follow up to her ears next week and if the are still dull, then we are off for tubes. The ST told me she has seen multiple children who exploded with sounds as soon as their ears cleared up. She sees the ped endocronologist June 8. So we will continue to be patient as this all unfolds and we watch her grow and learn daily. It is so hard for me to be on this side of the "therapy" world, now I understand my patients family's who want to know why the progress isn't faster. Patience, patience, patience!!

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