Yeah, yeah, I know it is the end of January and I am posting a Christmas picture. Well if you read my previous post then you will understand!
CoCo turned 15 months on the 19th and she is doing so good! We can see how much she is really understanding now. She still isn't verbalizing anything other that vowels and "duh" but she has started pointing at things (not on command but if she wants something) and she will walk over to us and raise her hands at us when she wants to be picked up. These are HUGE steps for her! She had an appt last week and she was 28" and 19lbs. She has started picking up in the weight category but still lagging in the height. Our dr knows that we understand her deficits but he always shows us exactly where she is even if it is hard to hear. It is hard for us to remember that although she is progressing in our eyes, time is still passing and she is still getting older. She is not progressing as fast as she ages, therefore she is further behind in all areas. She was referred to Magnolia Speech School for a hearing evaluation and another speech evaluation just for us to look at our options. This will take place Feb 25. I do not believe that anything is wrong with her hearing and the ENT doesnt either but we want to cover every base.
Now back to her size, we are starting her growth hormone testing on Wednesday, Feb3. She still isnt on the growth chart but catching up a little in the weight category. We are having all the bloodwork done at our Peds office and then sent to the Endocrinologist for interpretation and planning. We have found out the hard way to make sure that we have at least 1 dr knowing what every other dr is doing. This is so hard because all of our drs are associated with their own private practice and then 2 drs are at UMC. There is no system that they can just type in her name and all of her info come up, so I now have all bloodtests at one place where they will fax me all results and I get them to the right dr.
I know I always say this, but she is really such a fighter. She is just so happy and sweet, we can't help but be so thankful at how far she has come!